The mum of a two-year-old girl battling a brain tumour is paralysed in hospital after suffering a condition that could have killed her.
Arlene Patterson was rushed by ambulance to Dumfries Infirmary just a day after receiving further devastating news about little Nyia.
After losing power down her left side, doctors diagnosed her with an aortic dissection – a tear in the inner layer of the body’s main artery that could have been deadly.
Arlene, 40, is still in hospital while husband Wullie cares for Nyia at home in Lochmaben.
She said: “I’m still in hospital and I’m worried sick about Nyia who is at home with her dad and brothers and sister.
“We were told on Wednesday during a hospital appointment in Glasgow that her tumour is continuing to grow and is exacerbating the sleep apnea which she has and can stop her breathing up to eight times a night.
“I took ill the following night.”
Arlene and Wullie have been in a race against time to find the money for potential treatment that could prolong Nyia’s life after she was diagnosed with a Glioma tumour on her brainstem last December.
In January, they were told there was no treatment available on the NHS to help Nyia and that they should “go home and make memories with their family”.
But world-renowned neurologists at the Walton Centre in Liverpool could be able to help Nyia privately at a cost of around £100,000.
With only £10,000 available so far, the couple are hoping a crowdfunder set up by family friend Donna Gordon will help raise the rest of the money they need.
Donna said: “Every donation will aid with the exploration of further treatment options that may prolong and improve Nyia’s life.
“Any contribution would be appreciated.
“She spends so much time in hospital away from her much loved siblings, Ceyrian, Rhys and Eden, has seizures and suffers with sleep apnoea, which causes her to stop breathing during the night.
“As Nyia’s tumour grows it will put pressure on other areas of her brain and her difficulties will increase.
“It is not possible for doctors to tell the family how long Nyia may live with this condition.
“Arlene and Wullie are determined to do everything they can to access treatment and support for Nyia, however having exhausted what it available on the NHS they are now faced with having to raise huge amounts of money themselves to help her.”
Arlene added: “We will do anything we can to keep her with us for as long as we can.”
To make a donation, visit the official Just Giving page.
To keep up to date with Nyia’s story you can follow the family on Tik Tok: NyiasJourney (@nyiasjourney).
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