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Mum whose son was born with no legs, one arm and webbed hand says ‘he’s perfect’

When Rosie Higgs was told her son would be born with no legs and just one arm with a webbed hand she never doubted she would keep him.

And as her “perfect” 11-month-old Henry gurgles with delight playing with his rubber bath toys she knows it is the “best decision” she has ever made.

Rosie, 29, discovered at her 20-week scan that her unborn son was likely to have Amniotic Band Syndrome – where strands in the womb entangle a baby’s limbs and inhibit proper growth.

Given the huge physical challenges he would face, family and friends questioned whether she should terminate the pregnancy.

But mum-of-three Rosie, of Harrow, North London, was sure.

The special needs school care ­assistant said: “I was keeping him – no matter what I was advised.

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Henry Higgs aged five months

“People warned he might have a tricky life full of limitations but I didn’t listen. Even though Henry doesn’t have all his limbs, I’m ­determined he will have a fantastic and full life without limitations.”

Her partner Peter, 39, agreed with her. She said: “Peter and I decided Henry deserved a chance. Peter was so supportive and we made every decision together.

“We knew we would never ­terminate the pregnancy. Working with special needs children every day, I knew Henry would be OK.

“It was scary at times being pregnant. I had scans every four weeks – they kept a close eye.”

Henry with his sister Alice Higgs, 13, brother Michael Higgs, seven, mum Rosie and dad Peter Higgs
Henry with his sister Alice Higgs, 13, brother Michael Higgs, seven, mum Rosie and dad Peter Higgs

To make matters worse, due to the pandemic, Rosie’s supportive mum, Paula, 55, could not be at the birth at Northwick Park Hospital, Harrow.

Rosie said: “It was heartbreaking, especially as Henry was high risk. But the midwives were incredible.”

Henry was born by caesarean weighing a healthy 8lb 2oz. She said: “The midwives asked if I wanted to see him straight away as I was nervous.

“Scans can only tell you so much. It was such a build up and a worry when he first came out I didn’t know what to expect.”

Rosie discovered at her 20-week scan that her unborn son was likely to have Amniotic Band Syndrome
Rosie discovered at her 20-week scan that her unborn son was likely to have Amniotic Band Syndrome

Midwives took Henry to one side and Peter, an Emirates facilities seating supervisor, saw him first.

Rosie said: “As Peter passed me my little boy I fell in love.”

When Rosie took the tot home sister Alice, 13, and brother Michael, seven, didn’t bat an eyelid at his physical differences.

Henry loves playing with his older brother and sister.

Henry was born by caesarean weighing a healthy 8lb 2oz
Henry was born by caesarean weighing a healthy 8lb 2oz

Rosie said: “Alice treats him like her own baby. She loves him so much. She’s his second mum.

“Regular baby clothing is very difficult as you have to roll everything up or it looks ridiculous. Mum likes to crochet and knits so she makes him outfits.”

Henry had surgery at Great Ormond Street to separate his webbed hand.

Rosie said: “He’s can pick things up without any problems. He’s progressing really well and is happy.

Mum whose son was born with no legs, one arm and webbed hand says 'he's perfect'

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“He’s babbling all the time like he’s talking to you and replying. He wakes me in the morning with his chatter.”

Peter and Rosie hope their experience will make adults realise it is all right for their children to be different.

Rosie said: “I know he will always be a little bit different but we take it day by day and I know he’ll be able to cope.”

The family has been supported by Reach, a charity which helps kids with upper limb differences lead full lives.

Buying regular clothing for Henry can be difficult
Buying regular clothing for Henry can be difficult

She said: “Thanks to the charity I’ve been in contact with loads of parents in similar positions. They’ve really helped me get through it.

“Henry is such a happy chap and doesn’t let his disability hold him back in any way.”

Rosie added: “He might not have all of his arms and legs, but he’s absolutely ­perfect to me.”



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